Siblings, Luke & Molly are both
Fighters against Myelodysplastic Syndrome (MDS)/Monosomy 7. Luke was
diagnosed with Myelodysplastic Syndrome (MDS)/Monosomy 7 when he was 8
1/2 months old. He went through chemotherapy followed by a bone marrow
transplant on 4/12/06. He has battled some side affects since due to his
treatment, but is doing well. Molly was diagnosed with Myelodysplastic
Syndrome/ Monosomy 7 (MDS) May 2010, yes, this is the same cancer her
brother Luke was diagnosed with in April 2006! Although their family
has been on this cancer rollercoaster before, it's not one that you want
to repeat and still can't believe they are doing it with a different
child. Luke is 7 and in the 2nd grade. He is all boy. Loves anything
with wheels and motors--trucks, tractors, 4wheelers, monster trucks,
dirt bikes, boats, planes, etc. Also enjoys sports (plays baseball,
basketball, soccer and golf), Lego's, playing outside and camping. Molly
is 4 and in preschool. She is very much a girly girl. She LOVES to
dance and sing. She wears dresses and skirts everyday. Enjoys playing
dress up, make up, barbies, watching movies. Many people are wondering
how her parents decided to have Molly tested because she seems and looks
so healthy. She has been healthy and is always happy. Her Mom had
noticed some bruising over the last 2 months, so she waited for her 2
year check up to have her blood counts looked at. (didn't want to seem
like the crazy cancer mom and bring a 2 year old in for testing because
of bruising!) Their doctor is wonderful and ordered the labs right away
even though she had no bruising that week. So, there really wasn't a
reason to have her tested other than her Mom knew something wasn't
right. Unfortunately, her suspicions were confirmed. Their parents took
her right to the U of M and Molly was diagnosed with MDS/monosomy 7 on
May 26, 2010. All the doctors have been pretty shocked, as well as
their family, that they have another child with this horrible disease.
They found out there are only about 20-30 families with siblings with
this. They have consented to testing through the U of California San
Francisco to see if the kids carry a genetic link. It will take some
time to get these results back, and if they do, further testing will be
needed. Their first priority is to get Molly better. After visits 3
times a week in June to have labs and a white shot booster, Molly went
through the bone marrow transplant work up at the end of June and was
admitted to U of M Children's Hospital on July 2, 2010 for 10 days of
radiation/chemo before having a bone marrow transplant on July 12, 2010.
Images by: Sarah Edgar Photography
1 comments:
Wow what a story. I am sending along prayers for both of these brave fighters and their family.
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