Emaleigh was diagnosed with an extremely rare congenital overgrowth disorder in 4/2010 called CLOVES Syndrome (www.clovesfoundation.org).
Her condition has caused significant tumors in her lower body, very
thin upper body, overgrown bones in her feet, leg length discrepancy,
and large veins. Because of the overgrowth condition, she was at a 7%
higher risk for developing Wilms Tumor, so recommended scans were
performed every 3 months. Every scan we noticed a change in her left
kidney, it was more than double the size of her right kidney, she had
small classifications, and the wall of the kidney was very dense. After a
bilateral foot amputation (metatarsal), during our routine Ultrasound,
we noticed that two tumors formed in the left kidney. After the MRI and
biopsy, she was diagnosed with bilateral Wilms Tumor (the first CLOVES
patient) on 12/27/11. After 6+ months of Chemotherapy and a left
nephrectomy, she is now cancer free and has been for 7 months.
Emaliegh's facebook page: Emaleigh Blankenship's Cloves & Cancer Journey
Hope Session by Andrea Lee Photography
3 comments:
She's Beautiful! Thanks for sharing this with all of us! You all are in my prayers everyday! God Bless!!
She is a gorgeous brave little girl! Just made a small donation.
Thank you so much Claire and Louise. She is my little light!
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