On July 18th, 2011 our sweet baby girl
Violet was diagnosed with Retinoblastoma, a very rare form of pediatric
cancer that develops in the retinas of the eyes.
Violet has
gone through CT scans, MRIs, surgeries, having a port-a-cath, blood
draws, injections, chemotherapy, exams under anesthesia (EUA) and more.
All of this began for her at just 7 months old.
After genetic
testing, it was found that Violet has the RB1 gene. This means that not
only is she susceptible to tumors occurring in her eyes, but she also
has a higher probability of tumors occurring in other parts of the body
throughout her life.
Violet was also found to have a small
deletion in chromosome 13. This deletion is known to cause many issues
including growth and developmental delays, autism, retardation, low
muscle tone, kidney failure, seizures, blood clotting, sensory
processing disorder and more. Violet is showing none of these! Praise
God!
Violet completed active treatment in 2012 and is in
remission! She continues to be monitored with Exams Under Anesthesia
(EUA), labs and Oncology follow ups every 12 weeks at Seattle Children's
Hospital.
Violet's support page: Violet Brielle - Surviving Retinoblastoma & www.violetbrielle.blogspot
Hope Session by Britny Sirotak Photography
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